About Aimee

  • About Aimee Liu

    Books by Aimee Liu

    Doris

    Gaining
    Author: Aimee Liu
    order online at www.bulimia.com

    Decades after her initial recovery from anorexia and the publication of her first book, Solitaire, Liu had a relapse, which set her on a new course of self-discovery, read more.

June 14, 2009

First Aid for Eating disorders!

A few months ago I participated in a survey process that was part of the development of an important new resource for families and friends of eating disorders sufferers. I am very pleased to announce that the Mental Health First Aid Guidelines for Eating Disorders now have been launched on the world wide web!

To access the guidelines follow this link:

http://www.mhfa.com.au/Guidelines.shtml

A description of the research process has been written and will be published as a peer-reviewed journal article in the next edition of Eating Disorders: Treatment and Prevention.

I expect that this resource can help many families and communities across the world (the project originated at the University of Melbourne in Australia) who find themselves faced with a developing eating disorder and would like to find some reputable information about how they should approach their loved ones disordered behaviours.

The guidelines can be viewed and downloaded for free. They can be reproduced for free, as long as it is for non-profit/educational purposes. If you would like to promote the guidelines on your website, please use the following link (http://www.mhfa.com.au/Guidelines.shtml ) or contact mental health first aid for more information.

In addition to the guidelines research, the researchers who compiled this resource are also surveying how web-users utilise the guideline documents. You will therefore be invited to complete a short online survey when you download one of the mental health first aid guidelines. Your responses will be valuable, so I encourage you to participate.

Be well!

Aimee

April 22, 2009

Read Aimee's ED essay in Ms. Magazine!

Dear Friends:

I’d like to let you know that the Spring issue of Ms. is just about to hit the newsstands, featuring an essay I wrote—“The Perfect Pantomime”—about how eating disorders are wordless cries for relief.
 
As I write: “Just think of an infant in pain or discomfort. She has no words, so how, beyond crying, can she call for help? She rejects her food. Soon enough, her parents or doctor notice she’s failing to thrive. They comfort her. They figure out what’s wrong and solve the problem. Why shouldn’t the same tack work for the embattled psyche of a suffering young woman?”
 
The new issue of Ms. also includes several other articles that reflect on the gains for women and children in the first 70 days of the Obama administration, from reversing egregious Bush reproductive health politics to signing anti-discrimination legislation to recognizing women’s employment needs in the stimulus package. One of the stories of particular interest shows how Hillary Clinton is already transforming the State Department into a place where women’s rights are of prime concern rather than just an afterthought. Ms. wil further expand its post-election coverage to Obama’s first 100 days on the www.msmagazine.com <http://www.msmagazine.com/> website.
 
The Ms. cover story is the first-ever Ms. “Guide to Women’s Studies,” which overviews the burgeoning academic field—over 90,000 students!—and offers data on nearly 200 undergraduate and nearly 50 graduate programs (with more undergrad data online).
 
Finally, if you or your child is a fan of the Twilight series of books and films, there’s an article called “Taking a Bite out of Twilight” that gives a feminist critique of its views of young women’s sexuality.
 
Ms. helps us to be righteously angry (instead of depressed) about what’s going on in the world, and encourages us to use that energy to move forward. Look for it on newsstands or, even better, join the Ms. community at https://store.msmagazine.com/ <http://www.msmagazine.com/donations/ms/mswriters.asp> and have the new issue sent right to your door.

Cheers!

Aimee

April 06, 2009

News and Dates

Dear Friends,

<p>Re: FW: Starving for Medical Help, April 3, 2009</p>


I want to let you know about a couple of upcoming dates, as well as an extremely important and useful new resource from the Academy for Eating Disorders.

First, the dates:

1. I'll be speaking at a fundraiser for the new McCallum Foundation in St. Louis on Friday evening, April 24.
Proceeds from the event, to be held at the Randall Gallery, will help defray the costs of eating disorder treatment for patients who have limited or no insurance.  For more info about the event, please contact:
julie.parker.bowerman(at)gmail.com

2. I will be presenting at the Academy for Eating Disorders annual conference in Cancun, Mexico, on Saturday, May 2. The panel, which will include my fellow AED Advisory Board members Dr. Cynthia Bulik and Susan Ringwood, is titled "The Role of VOICE as a force for recovery and societal change." If you are attending the conference I hope you will join us! For more about the conference visit www.aedweb.org

And now for the new AED resource, actually a position paper: "Eating Disorders are Serious Mental Illnesses."  http://www.aedweb.org/policy/AED_MentalIllness.pdf
This is the most succinct summary of the current scientific understanding of eating disorders that I have read, and it is a POWERFUL tool in the fight for insurance coverage and public awareness about the truth of these BIOCHEMICALLY BASED SERIOUS MENTAL ILLNESSES.
The paper was written for publication in the Intl. Journal of Eating Disorders and should be mandatory reading for everyone and anyone with an interest in eating disorders.



March 22, 2009

Let's get the FREED Act passed!

We're on the brink of a major step toward Eliminating Eating Disorders, but we need your help for the final push before April 1.  It will only take a few minutes.

On Tuesday, February 25th, 2009 the Eating Disorders Coalition held a press conference with Congressman Kennedy in the Capitol Building announcing the introduction of the first ever comprehensive eating disorders bill in the history of Congress.  The Federal Response to Eliminate Eating Disorders Act otherwise called the FREED Act, (H.R. 1193) is now in the House and we need you to contact your Representative and urge them to show their support for this bill.


WRITE A LETTER:


Rework the sample letter below and make it your own and send it to your Representative in the House. To find out who your Representative is go to www.house.gov and put in your zip code.  Then look up your Representative in that directory and go to their website.  Here you can contact them through email.  Cut and paste the letter below into the email.  I encourage you to put a sentence or two (not more since short and concise is always better when communicating with Members of Congress) about your own personal experience with an eating disorder if you have one.  This makes the communication much more personal and real for them.


THE SAMPLE LETTER


Your Name

Street Address

City


March 3, 2009


The Honorable First Name Last Name

United States House of Representatives

Washington, DC 20515


Dear Congressman(woman) XX,


As a member of the Eating Disorders Coalition and someone who has personally suffered the impact of living with an eating disorder, I am writing you today to ask your support for the Federal Response to Eliminate Eating

Disorders Act (H.R. 1193).   This is the first comprehensive eating

disorders bill in the history of Congress.  By focusing on research, education, prevention and treatment this bill is a beacon of hope for the millions of people currently suffering from an eating disorder.


It is estimated that 9 million Americans suffer from anorexia, bulimia, binge eating and other eating disorders.  Eating disorders are associated with a host of medical complications including cardiac arrhythmia, cognitive impairment, osteoporosis, infertility, heart failure and most seriously death. In fact, anorexia nervosa has the highest death rate of all mental disorders, upwards of 20%.


Research shows that eating disorders can be successfully overcome with early detection and adequate and appropriate treatment.  Unfortunately eating disorders are often undiagnosed by health professionals and/or access to treatment is limited.  Less than half of all people with eating disorders receive the treatment needed.


The Federal Response to Eliminate Eating Disorders (the FREED Act) can change these state of affairs.  H.R. 1193 will save lives by providing more funds for research so that we can better understand, prevent and treat eating disorders, grant programs that provide training for health professionals, and steps toward better access to treatment coverage.


We urge you to sign on as a cosponsor of the FREED Act.   I look forward to

hearing from you.  Thank you again for your consideration.


Warm regards,


First and Last Name



YOUR EFFORTS MAKE A DIFFERENCE


These advocacy efforts can help us pass the FREED Act!


Thank you so much for all your actions - every one of you writing a letter makes a difference.  With enough people taking this step we will make ourselves heard and will eventually pass this bill!

February 10, 2009

Treatment Study looking for volunteers

Hello All,
I just received this.  If you know of any candidates who would be interested, please contact  Dr. Fitzpatrick, below:

STANFORD UNIVERSITY SCHOOL OF MEDICINE DEPARTMENT OF PSYCHIATRY

Stanford University School of Medicine Department of Psychiatry is
looking for adolescent volunteers for a new Bulimia Nervosa treatment
study.

This study is comparing three outpatient treatments for bulimia
nervosa in adolescents ages 12-18. The treatments extend over a 6
month period and all consist of 18 sessions. The first treatment is an
individual Cognitive Behavioral Therapy for adolescents (CBT), the
second is a Family Based Therapy for bulimia nervosa (FBT-BN), and the
third is individual Supportive Psychotherapy (SPT).

Who Can Participate?
Adolescents (female or male) ages 12 to 18 with a current
diagnosis of Bulimia Nervosa
Must be medically stable for outpatient treatment
Must be living with at least one parent
Must be able to speak and read English
Must be willing to be randomized to any treatment condition
Must be able to make a 1.5 year commitment

The treatment is free. The therapy sessions occur at Stanford
University, and are typically scheduled weekly.

If you are interested in enrolling in the study or would like to ask
us some questions please contact Brittany Alvy by phone at (650)
723-9182, or by e-mail at balvy@stanford.edu

Kathleen Kara Fitzpatrick, Ph.D.
Instructor of Psychiatry
Stanford University
Lucile Packard Children's Hospital
401 Quarry Road
Stanford, CA 94305
tel. 650-723.5511
tel. 650-736-7972
fax 650-724-7389
fitzpatk@stanford.edu

January 20, 2009

You Can Help!

As many of you know, I am a member of the Advisory Board to the Academy for Eating Disorders. Here's why I support this organization, and why I urge you to.

Around the world, many people with eating disorders struggle to find the treatment they so much need and deserve. One important reason for this is a shortage of trained, informed clinicians to provide that treatment.

You can help by sending a donation (however big or small) to the AED Clinician Scholarship Fund.

Each year the AED hosts a conference which provides a wonderful mix of up-to-date research perspectives, best-practice treatment options and access to many of the best minds working in the field today.  Making it possible for clinicians from other countries and under-represented groups to get to this conference is a practical and cost-effective way to increase the chances that people with eating disorders will be able to find effective treatment.

Your donation will help make it possible for clinicians such as Sebastian Soneira to gain the skills and information they need to provide caring and professional treatment for people with eating disorders.  For information: http://www.aedweb.org/donation/donate.cfm

 

Sebastian writes:

 

This year I had the wonderful news that the AED had granted me the Clinician Scholarship. For me it was a unique experience since it was the first time I attend to a congress outside Argentina, and it wouldn’t have been possible without the scholarship help.

I enjoyed every hour of the conference since I had the chance to know face to face many experts and to exchange experiences with other colleagues from around the world. Additionally, I was accepted as a member of the advocacy committee and I joined two special interests groups.

Back in Argentina I organized a special session at the center to share the experience and knowledge I acquired with my colleagues. I’m in touch with many people I met at the conference and I guess this is one of the great benefits of belonging to an organization with world wide members such as the AED. It its highly motivating and inspiring to receive such an award and I guess this kind of things are the ones that assure you that you are on the right path and justify  the efforts made to pursuit professional excellence.

 

Many Thanks!          

Sebastian Soneira, MD

Buenos Aires, Argentina

                                                              

 

January 18, 2009

CALL FOR CREATIVE SUBMISSIONS

Dear friends,

 

I just received the following announcement from Rebecca Lester, PhD, MSW, PLCSW, who has recently launched a non-profit organization dedicated to education and advocacy issues for eating disorders and other culture and mental health issues called The Foundation for Applied Psychiatric Anthropology (FAPA).  The website is www.psychanthro.org.

She wants us to know about two new initiatives, in case you (or other people you know!) might be interested in participating.

 

Please reply to Dr. Lester via the website.  Here’s her announcement:

First...

We are currently soliciting submissions for an edited volume of poetry and other writings created by Eating Disorder survivors.  The aim of this project is to convey the profound suffering this illness brings, as well as the hopes and successes that can come with recovery. 

We consider an eating disorder "survivor" anyone who has suffered, or is currently suffering, with an eating disorder, yet who remains alive to share the experience.  One does not need to be fully recovered to be a survivor.  However, we do ask that people who are currently in treatment or early in their recovery discuss their participation fully with their therapists and/or treatment teams before submitting their work.

As we know, many survivors of eating disorders are amazingly talented and eloquent, and many write poetry or other musings as part of their journey.  Unfortunately, most of it remains in the pages of personal journals or filed away somewhere, and is not shared with others who might have their eyes, minds, and hearts opened by reading it.  It is our intention that this volume will become a valuable resource for clients, professionals, families, and the general public by illuminating the complex and devastating contours of these illnesses, as well as the strength and reliance of those who battle it every day.

We welcome any and all submissions written at any stage of illness or recovery.  Although we may not be able to accommodate all submissions in the present volume, our aim is to include as many as possible.  If we get enough submissions, we may consider publishing additional volumes.

The collection will be marketed to established publishers and will be available for purchase nationally (and perhaps internationally)  All proceeds will go to The Foundation for Applied Psychiatric Anthropology to fund additional education and advocacy initiatives related to culture and mental health, including eating disorders.

Contributors to this volume may remain anonymous if they do not wish to reveal their identities.  As the editor, I will need to know who they are (in order to get permissions signed and so forth), but authors may remain unnamed in print if they wish.  Certainly, others may want to use their real names.

On our website (on the Advocacy and Education page) is a form that may be given or emailed to anyone who might be interested in contributing to this effort.  Contributors can send in hard copies of the form and their work, or they may send both by email or secure fax.  Please let ANYONE who might be interested in participating in this project know about it!

Second...
The other initiative currently underway is the arrival of our first Advocacy and Education Poster, which promotes the message that no one CHOOSES to have an eating disorder.  Posters are 11 x 17, full color,100lb text gloss print, and may be viewed on our website.

Posters are available for FREE via our website with a $5.00 donation to The Foundation for Applied Psychiatric Anthropology (shipping is free, too!).  Visit our website at www.psychanthro.org to get yours today!

Thank you for your support!

Rebecca Lester, PhD, MSW, PLCSW

Department of Anthropology                 Executive Director and Psychotherapist

Washington University in St. Louis       The Foundation for Applied Psychiatric Anthropology

www.psychanthro.org
www.cathexa.com

 

January 15, 2009

Connect Through Service

 Hey Everybody,
         My last blog was about setting the stage for recovery by reaching out to others. One superb way to reach out is to find ways to be of service to others.  Now,  this is very cool.  Obama's campaign has morphed into a service campaign! 
        Go to this site to find what forms of service are coming up near you!

         http://www.usaservice.org

         To celebrate the Inauguration, I signed up to give blood, but I could have cleared wilderness, or registered voters, or joined any of a hundred other forms of service.  It's very easy to navigate the site and find local, convenient, and meaningful ways to help and connect to others.

         Please volunteer, and pass this on!

         Aimee

January 14, 2009

Setting the Stage for Recovery

Eating disorders thrive on self-deception.  The most obvious lies ED tells us have to do with our relationship to food, fat, and weight – specifically, that however much we have or are is just not good enough.  But in my opinion, the most pernicious lie in the ED arsenal has nothing directly to do with eating.  Rather, it is the notion that we “need” to be left alone. 

In fact, it’s not the person but the illness that depends on isolation.  Starving, bingeing, and purging are secretive and solitary behaviors that feed on shame.  And shame itself is alienating.  Shame tells us that no one else could possibly understand, care for, or help us.  Shame insists that we do not deserve friends or loved ones.  Shame makes sure that we feel alone in the world, and stranded.  As a result, isolation becomes the hollow core around which an eating disorder spirals.

Full recovery demands that we confront that lie of isolation.  In truth, no one on earth is alone.  There are billions of us here!  And we are all to greater and lesser degrees related by our mutual flaws and yearnings, our weaknesses and frustrations, our common human needs.  The challenge is to identify and reach out to those who can help us tap into that shared humanity in the healthiest possible ways. 

Think of this as setting a stage.  You may feel as if you’re alone on this stage.  But actually, crowding in the wings is a large cast of friends, family, teachers, pets, classmates and colleagues, doctors and therapists.  Some have known you your whole life; others may have just met you.  Some are worried for you, but don’t know what to do.  Others have the tools to help but need your permission to approach.  Many are as baffled and frustrated by ED as you are, and will gladly support you in your battle – if only you will let them. 

Here’s another truth: you have the power and the right to decide who will join you on the stage of your own future.   But staying out there alone is not a viable option.

Setting the stage for recovery, then, means exercising your power to connect to others.  If that sounds daunting, it may be because ED has convinced you you’re powerless to make your own choices, especially when it comes to love and trust.  ED trains us to fixate on our bodies instead of relating to each other.  So the longer you’ve had an eating disorder, the more difficult it may be to accurately see or hear the people around you. 

It may help to think of yourself as a casting director.   Before a play is cast, actors must audition.  The casting director pays close attention to each candidate’s voice, expression, and body language.  He asks himself which of these individuals will be best for the play – which will bring the most genuine energy, useful skills, and honest commitment to the common effort?  The people you choose to set the stage for recovery should meet the same criteria.

So take a long and honest look at the people who surround you.  Consider how you are connected.  How has your ED affected them?    How much do they want to help you? What could they contribute to your recovery?  What do you need to do to help them help you?

Those you choose to join you on your stage need to support you without judging you or tearing you down.  They’ll be the ones who make a genuine effort to understand what’s wrong, and do their utmost to help you figure out how best to make it right.  They’ll admit they don’t have all the answers, and they may have flaws of their own.  They’re not perfect; they’re human.  But they are wholeheartedly there for you, for your health, for your wellbeing. 

You just need to push ED out of your way long enough to notice them.

December 31, 2008

GOOD NEWS OR BAD NEWS FOR 2009?

Happy New Year!

How often do we say these words without really meaning or even thinking about them?  Worse, how often do we wish others happiness while silently despairing of our own?  For most of us, the answer is, too often.

We do have a choice, you know.  It’s that old glass half full or half empty thing.  I’ve been thinking about this in response to a comment posted on my blog yesterday: “I would like to know where you got the information that the vast majority of girls with eating disorders eventually get better? I was in treatment two years ago and they told us exactly the opposite.”

Now, I’m not in a position to second guess the accuracy of this report, let alone speculate why any therapist ever would discourage hope in treatment.  But I will say that the emphasis in statistics about eating disorders is almost always on the downside – highlighting the high prevalence, mortality rates, and relapse rates. These scary statistics are publicized in order to persuade the public that these illnesses are serious and widespread enough to warrant preventive education, treatment, insurance coverage, and research.  Even one person who dies of an eating disorder is one too many.

On the other hand, those who are already ill don’t need to be told how dangerous these disorders are.  They need to focus on the flip side of these statistics: the recovery rates.  Those rates are difficult to come by, mostly because the vast majority of people with eating disorders never receive treatment and so never are counted.  Patients, who are counted, at least until recently have tended to be those most severely ill.  And those who are sickest have lower rates of full recovery.  All this means that the true recovery rates are most likely higher than the published rates.  But even if we consider only the official recovery rates, the outlook is generally positive.

Anorexia nervosa is widely considered to be the most difficult eating disorder to treat and the most persistent.  Yet here is the report from Laureate Clinic in Tulsa, OK, published in 2003: “for the overall spectrum of patients with anorexia nervosa, approximately 75%–85% will completely recover. If patients who experience significant improvement are included, the rate of positive outcome rises to over 90%. Thus, a 75%–90% rate of recovery is a more accurate estimate.” http://ajp.psychiatryonline.org/cgi/content/full/160/4/798

Does recovery happen “spontaneously” or “perfectly”?  Does recovery look the same in every case?  Does recovery guarantee a “perfect” life?

The answer is no.  There are no statistics on instant, easy, or perfect recoveries – because such recoveries do not exist.

Recovery takes time and is messy.  It involves effort and hope and courage to change.  Most of all, it requires acceptance of all the imperfections, all the unknowable truths and uncertain possibilities that life contains.  Recovery means ignoring the numbers, whether on the scale or in statistics.

I remember years ago when my teenage son was angling for permission to go to a club in a dangerous part of town by saying that all his friends went there all the time. I replied that I really didn’t care how many of his friends went and came back safe; my sole concern was that he be safe.

When it comes to your recovery, the same rule applies.  It doesn’t matter what the statistics say; it only matters that you grant yourself the permission, support, encouragement, and time that you personally need to reclaim your future and your health.

So fill your glass and raise it high, and this time really mean it when you promise yourself a happy and healthy new year!

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